Grief

Grief

It is in crisis that what we have hidden from ourselves and each other is often exposed.  Lessons, not very pleasant lessons, are taught. What is learned is another matter. When a family health crisis threatens to take your beloved child, you can’t help but notice the...
It Takes A Village

It Takes A Village

We were making our way through the maze of medical information and doctors for these very complicated blood diseases (MDS, AML), which requires highly specialized knowledge to understand and treat. The medical staff is compassionate and knowledgeable. Family, friends,...
Why?

Why?

  Artwork © Shulamit Elson. All Rights Reserved.   When bad things happen to good people, and good things happen to bad people our sense of justice is insulted and our sense of order outraged.   The world proceeds in an orderly manner, or so we would like to...
And You Thought The News Was Bad Before Part 2

And You Thought The News Was Bad Before Part 2

After the phone call from NIH we immediately contacted our doctor.  Dr La Di Dah was off on rounds and didn’t answer our urgent calls. When finally we tracked her down she was her relaxed self.  What’s all the excitement? So we had to fight to get her attention so...
And You Thought The News Was Bad Before

And You Thought The News Was Bad Before

Well into the year (2016) and we were at status quo.  The only reminders are the fatigue and the bruising, which makes going to the dentist for a routine checkup an epic event.  It is possible that we could continue like this for years.  But I don’t believe that.  I...
How To Forgive

How To Forgive

After we met with Dr. N things settled back into “normal.” If one means by normal that no one is speaking about the big elephant in the room. I am still pressing for a second opinion, third actually, from another outside facility. Doctors within the same institution...