Why?

Why?

  Artwork © Shulamit Elson. All Rights Reserved.   When bad things happen to good people, and good things happen to bad people our sense of justice is insulted and our sense of order outraged.   The world proceeds in an orderly manner, or so we would like to...
And You Thought The News Was Bad Before Part 2

And You Thought The News Was Bad Before Part 2

After the phone call from NIH we immediately contacted our doctor.  Dr La Di Dah was off on rounds and didn’t answer our urgent calls. When finally we tracked her down she was her relaxed self.  What’s all the excitement? So we had to fight to get her attention so...
And You Thought The News Was Bad Before

And You Thought The News Was Bad Before

Well into the year (2016) and we were at status quo.  The only reminders are the fatigue and the bruising, which makes going to the dentist for a routine checkup an epic event.  It is possible that we could continue like this for years.  But I don’t believe that.  I...
How To Forgive

How To Forgive

After we met with Dr. N things settled back into “normal.” If one means by normal that no one is speaking about the big elephant in the room. I am still pressing for a second opinion, third actually, from another outside facility. Doctors within the same institution...
Prayer and Meditation Part 2

Prayer and Meditation Part 2

When a beloved is ill,  you want to do everything, anything to help change the outcome.  Finding the right kind of medical help is of course a priority.  Providing the emotional equivalent of chicken soup and fluffing pillows is essential.  Laughter and joking is...
Prayer and Meditation Part 1

Prayer and Meditation Part 1

Now we wait for the other shoe to drop. Hopefully we will be the outlier, and defy statistics.   Meanwhile the illness, MDS, remains with the fatigue and the bruising, the elephant in the room.   But there is also good quality of life. There is joy. There is laughter....